Changelog

Every update, in order

I rebuild my profile every two weeks, in time with my chemo cycle. This is the running record of what changed each time: my condition, what I worked out, what became available to download or request, and anything new that came out of putting it all in public. Newest first.

  3 updates so far · latest 21 October 2026

21 October 2026

Latest

Cycles 4 and 5 · 1 – 21 Oct

My condition
  • Open Source Me is now My One View. Same data, same openness, clearer name. The page lives at fcancerwith.ai/my-one-view and the sheet at /my-one-view/card. Every old link redirects.
  • CEA is 47.3 µg/L. 146 on 1 September → 47.3 on 12 October; steady at about 45–50 over the last three draws. The hard fall across the restart has levelled off rather than continued, and one reading is not a trend — the CT the week of 2 November is what answers it. ALP has gone 102 (July) → 165 (1 Sep) → 179 (14 Sep) → 169 (29 Sep) → 190 now. Haemoglobin and red cells are still just under range, bilirubin is back inside it at 14, and red cell distribution width is flagged high for the first time. The 29 September platelet count is confirmed at 280, inside range.

    My condition
    • CEA is 44.6, down from 50.9 on 14 September and 146.0 on 1 September. Third fall in a row — about 69% across three cycles of the restart.
    • Cycle 3 was physically easier than Cycle 2. Same drugs, same doses; what changed was soup-only through the nadir weekend and stepping the laxatives down once things moved. No GI emergency this time.
    • Haemoglobin (126) and red cells (4.09) have drifted just under range. ALP is still high at 169. Bilirubin 21, marginally over — I have Gilbert's syndrome.
    • Cycle 4 started on 30 September. Cycle 5 is 14 October, with a CT scan after it.
    What I found out
    • I finally pinned down what sequencing I've actually had: a 517-gene panel, aligned to hg19. Not whole genome. Not whole exome. A lot of people assumed otherwise, including me.
    • The tumour panel is reported tumour-only, so my inherited variants are sitting inside it — that matters for anyone reanalysing it.
    • Daily tracking now runs to 29 September: 40 days, morning and evening, across three cycles.
    • The cycle map is now Cycle 4, with metformin established from day 4.
    New to download or request
    • The full manifest of my raw sequencing package — 17 files, 36GB, every size and MD5 checksum. The files themselves are available on request.
    • Daily tracking as a CSV, 20 August to 29 September.
    • The 29 September bloods as a PDF, identifiers redacted.
    • The Cycle 4 map as a PDF.
    • The One View as PDF, plain text and JSON.
    What it flagged up
    • A genomics researcher read this site and pointed out that panel testing isn't whole genome sequencing — and that sequencing tumour and normal tissue together is what opens a personalised therapy route. Three people have now said the same thing independently.
    • There's an NHS route to it. The South West Genomic Medicine Service covers Bath. That's the next call I make.
    • An oncologist has offered to work on vaccine design voluntarily, and flagged that sequencing deep enough for that is a different, deeper job than clinical sequencing.
    • Five vials of blood went to a blood analysis company at the end of September.
    • One gap I can't close yet: the platelet figure on my copy of the 29 September report is unreadable, so it's blank rather than guessed.

17 September 2026

Cycles 1 to 3 · 19 Aug – 17 Sep

My condition
  • CEA 50.9 on 14 September, down from 146.0 on 1 September — the first big fall after restarting chemo in August.
  • ALP high at 179, globulin 37, platelets 289. Bilirubin normal.
  • Cycle 3 infusion on 16 September. Chemo restarted 19 August after progression during the summer break.
What I found out
  • Rebuilt the whole site around Open Source Me (now My One View): one card carrying my entire profile, always the latest version at the same URL.
  • Split the full record into Current and Archive, so what matters now is at the top and the older material is still there, just further down.
  • Published my first cycle map — day by day across a 14-day cycle, built from my own tracking.
  • Daily tracking from 20 August to 15 September: 26 days, morning and evening.
New to download or request
  • The One View as PDF, plain text and JSON — the plain text so a doctor can paste it straight into an email or a note.
  • Daily tracking as a CSV.
  • The 14 September bloods as a PDF, identifiers redacted.
  • The Cycle 3 map as a PDF.
  • The Radical Health report generated from my records.
What it flagged up
  • A genetic specialist in Australia started a conversation about mapping my whole genome rather than relying on panel tests.
  • Serova, who work on cancer vaccines, began looking at whether there's a vaccine approach for my smouldering myeloma.
  • A vaccine specialist in Argentina started sending approaches and research worth taking to my team.
  • Redacted everything before publishing: NHS number, hospital numbers, address, and the names of clinicians and lab staff.
See the live profile The whole record